Sunday, March 22, 2009

My Symbol of Hope - featured on Canadian Living April 2009

My two little girls, Megan, I, and Melissa, 4, are dressed in their pretty pink dresses. They're standing in a boat with their father, somberly clutching his hands. The boat is sailing in a vast expanse of water. It stops, and the girls slowly open a large urn, reach in, and take out a handful of ashes to sprinkle over the water. They are all sobbing.

I wake up in a cold sweat, terrified.
"No!" I cry out. This can't be happening. I'm too young to die.

And then it comes to me - a vision of a single daffodil. That and my brother's memory give me the strength to carry on fighting.

Back in the 1980s, my life was pretty good. Gord and I had been married for about eight years, had two beautiful daughters, and were living in a lovely home in Abbotsford, BC.
But things started to spiral downward when Gord was laid off from a series of jobs, the last one at BC Hydro.

Money was tight, so to help out, I got a part-time evening job as a security guard in a department store. I would get up with the kids in the morning and try to keep life normal throughout the day. Then I would make dinner and go to work in the evening. I wasn't coping very well with the stress; I lost weight, and didn't sleep or eat much.
Then I started to itch. It felt as if my skin was crawling with bugs. I attributed it to the stress of trying to make ends meet. One day, I felt a lump about the size of a quarter on my neck, just above my collarbone.

I wanted to believe it was only a swollen gland, but deep down I was terrified that it was something more serious. My mom insisted I see my doctor right away.
We had reason to worry: Mom and lost her only son - and I my only brother - to Hodgkin's disease, a cancer of the lymphatic system.

Jim was a tall, handsome man, recently married and working as a prison guard. He had made up his mind to quit that job to pursue his true passion - landscaping - when he came down with a strange cough. The cough worsened and Jim was eventually rushed to the hospital. I'll never forget the phone call from my grandma on June 28, 1981. She called to tell me that Jim had been diagnosed with cancer and was gravely ill. I didn't know much about cancer at the time except that there was a young man with one leg who had been running across Canada to raise money for cancer research until he had to stop when his cancer returned. My grandma said, "Didn't you hear the news today? Terry Fox died this morning."

Jim died, too, on May 5, 1982. Margaret, his wife, became a widow at the age of 27.
That history made my visit to my family doctor especially frightening. My fears grew when the doctor sent me right away to see a surgeon.

As the surgeon approached the examining table, he said, smiling, "Let's have a look at this lump." As he was checking my neck, though, his smile disappeared. He obviously felt something he didn't like. He immediately ordered a biopsy.

When I sat in my family doctor's office to hear the biopsy results, he was directly across from me. Without looking at me, he said, "There are good lumps and bad lumps; you have a bad lump."

People were quick to tell me that the survival rate for Hodgkin's was relatively good. But in our family, the track record with this disease was anything but good.

Nobody knew what to say to me. People smiled, but I knew what they were thinking: Will she die as quickly as her brother? What's going to happen to her children?

The first Sunday after my diagnosis, my mom and I decided to go to church. It was during a cancer fund-raising campaign, and on the cover of the program was a picture of a daffodil, along with words describing how we miss our loved ones who didn't make it. That touched a chord and made me cry. And when the pastor introduced communion, both my mom and I started to bawl our eyes out - she cried because she didn't want to lose another child, and I cried because I wasn't ready to die.

When the pastor learned of my diagnosis, he gave me a copy of Getting Well Again by Dr. O. Carl Simonton. The book discusses using visualization techniques to conquer cancer. I started practising some of these techniques. In my mind, I would send in little Pac-men to gobble up the cancer and create healthy cells in their place. These exercises gave me the strength to face the following days and months.

After a battery of tests - blood work, X-rays, a bone marrow biopsy and a lymphangiogram (where dye is injected into the lymph system) - I was admitted to the hospital for a procedure to determine the extent of the Hodgkin's and involvement of the organs.

After the test results came back, I was told that I needed 40 radiation treatments. According to my doctor, I would lose most of my hair; experience burns inside my throat and under my arms; lose my appetite; have a dry mouth; have problems with my bowels; probably become sterile; lose weight and strength; and possibly lose some lung function. I would also have to cope with the daily commute to and from Vancouver for treatments.

At home, the money troubles continued. I was unable to work, and Gord still couldn't find a job. Our relationship was further strained because we didn't know whether or not I would survive.
A homemaker came in every day to help care for the kids while I went for treatment and Gord looked for work. One homemaker in particular was a huge help. She would make me sit in a comfortable chair when I got home from my treatment and cover me in a blanket. She made me a sandwich or an Ensure shake, and made sure I took some food in. I had wasted away to 104 pounds - not much for someone who is five feet, five inches tall. I had also lost all the hair from the back of my head.

It was during this bleak period that I had the dream that would literally serve as my "wake-up call." I promised myself right then that when I got better I would not waste any time; I would pursue only those things that were fulfilling and healthy.

I also vowed to help others, as a payback for the kindness and assistance I received during my illness. I enrolled in a social work evening class at the local college even though I was frail and withdrawn. I felt I had to do something.

Gradually, I got better. But every spring was a reminder of my diagnosis, surgery and treatment. And although I was physically better, I still didn't feel better mentally.
On Easter weekend four years later, I was having a particularly difficult time. I felt stuck, unable to get past being a cancer survivor. I spent a happy few days colouring paper bunnies and Easter eggs with my kids, but there was something missing. I woke up early Easter Sunday when the house was still quiet and took the dog for a walk. We now lived in a new subdivision of Chilliwack, BC, full of empty fields. We walked through the mud and looked at the new grass poling up. We climbed a small hill and startled a duck that quacked loudly and flew off.

As we walked, I went over the same things in my mind, trying, once again, to make sense of it all. Yes, I had beaten cancer and was still alive, but why had I suffered and survived when my brother hadn't? And how long would I continue to survive? Every lump, bump, bruise or cough terrified me because it might be the beginning of a recurrence.

My dog and I entered the woods and started down a trail of fallen trees. Brambles of blackberries and tall old grasses poked up everywhere. We climbed over stumps and under branches. We slid down a muddy hill and climbed up the next one.

We were getting closer to home and I still didn't have the answers I was looking for. Those familiar feelings of terror and isolation came rushing back. I knew I would have to put on a happy face again for my family.

We turned another corner and there it was, at the end of the trail in a clearing - a single beautiful yellow daffodil. I felt a warm feeling wash all over me. It was a symbol of hope - the same symbol that was on the church bulletin of the weekend I was diagnosed with the cancer I thought I would never beat. I knew it was the sign I was looking for.

I called my dog and we ran the rest of the way home. I hid the painted eggs around the house and went upstairs to wake the girls. They got up giggling and grabbed their baskets. I had an especially warm glow in my heart that no one else needed to know about. They wouldn't understand.

That beautiful flower was a signal to change. My first marriage couldn't withstand all of the struggles and we divorced in 2002 after 23 years of marriage. I have since remarried and have a wonderful second husband (Darren) and two stepsons (Curtis and Spencer), in addition to my two beautiful daughters.

After completing my social work diploma, I earned my Bachelor of Arts degree in 2005. I now work as an academic adviser at the University of the Fraser Valley in Abbotsford.

I am living my life to the fullest, grabbing opportunities wherever and whenever I can. I have whale-watched off the coast of BC, ridden an elephant in Thailand, taught English in China and climbed ruins in Guatemala. I plan to keep on living, learning and giving back.

My girls, all grown up now, join me every year on the Canadian Cancer Society's Relay for Life team. Together, we celebrate my survival and honour my brother, Jim, and my mother, who lost her own batter with breast cancer. And we help spread hope for others while raising money for cancer research.

God doesn't give us more than what we can handle. When you think that life is unfair or that you can't take it anymore, remember, you can do it. Love your family and take care of yourself. And don't give up until you find your own symbol of hope.

Saturday, February 21, 2009

On Friday Megan and I went with the conference group to visit 2 NGO schools. The first was in a very depressed area, the old train station. It is a squatters area. They said that the size increases almost every night as people move in and build their houses in the night.
We went to see an elementary school classroom. The kids were so cute and very prepared for our visit. I don't think they get many visitors. These are some of the lucky kids who get to learn the Khmer language. The kids demonstrated a lesson led by one of the children. (I'll post pictures later). I'll also list the website for the organization.

We also went in to see what one young women had done with her training. She was able to learn sewing and purchace a sewing machine. Her business has been going well so she bought more sewing machines and now has about 6 people working for her.

After that school we went to another school compound. This one has up to 1000 kids and they provide outreach for another 500. The staff go to the dump site to get the kids. They assess their family situation to see if they can stay with their families or need to stay in the school. If they stay with their families they are given a bike to get to school. All the kids were dressed in uniforms and playing around during their lunch. They looked really happy. There are 19 different trades that they could be trained in. There is a cooking school and a restaurant. They sell handicrafts, teach dance, etc. These ventures seem to be making progress. Good thing.

After our tours we went back to the guest house, by tuk tuk, and picked up Darren. We went back to the river as it must have been pretty close to 40 degrees. We went on a boat out to the Mekong again. The boat dropped the anchor in the middle of the river and Darren and Megan went swimming! Someone had to stay aboard to take pictures.

We got a driver to take us to the restaurant Friends. This is another training org where the kids learn cooking and restaurant work. Some of them get hired by restaurants in the city. The food was wonderful! By that time it was dark and we got a young tuk tuk driver to take us around the city. It's a lot cooler if you keep moving. The streets are just packed with vehicles and are jammed together criss crossing, cutting, just pure chaos, that works. Can't figure it out but it works.
During the day when we were in the bus a couple on a motorbike bumped into the bus and the girl went tumbling off, in the middle of the road. She didn't get hurt but that could've been bad.

The driver took us to the lake that is in the city. Earlier in the day we'd seen where they are dredging the river. The sand from the river will be used to fill in the lake where they are going to build hotels. It is so sad to see this type of building. We went around the area that is just back alleys with guest houses and restaurants that will be eliminated because of this building. We've seen the one casino with it's flashing lights and huge screen lit up in the night. Cambodians are not allowed to go there but they sit outside on the grass in the evenings.

We're going to Siem Reap tomorrow and will be seeing Ankor Wat!

Wednesday, February 18, 2009

Arriving in Cambodia


We arrived in Cambodia after a couple flights, the first flight being 13 hours. Needless to say we were all tired but very excited to arrive in Cambodia. Our Tuk Tuk driver, Mr. Srieng was waiting at the airport with a sign with our names on it! He was very happy to meet us and we were just as happy he was there to take care of us. He loaded the 3 of us and our luggage on his Tuk tuk and drove us to the Nice Guest House where he had reserved our rooms.
We have nice clean rooms, airconditioning, and a fridge for $12 a night.

Mr. Srieng is also here all the time to take us anywhere so we did a bit of exploring our first day. The people are so friendly and we've been able to find English speakers easily. We went to the restaurant across from our guest house for dinner the first day and spent quite a bit of time talking to the owner, Tina. Her husband is Canadian and is an English teacher. Really nice people and great food. We went to bed by 6:30pm the first night. We were well worn out.

On Wednesday, the second day we went to the Tuol Sleng Genocide Museum. Melissa saw on BCTV that there is a landmark tribunal today, UN backed. The first against a former Khmer Rouge leader. It's in Phnom Penh. It's the first day of the trial. He was a boss at Tuol Sleng:
http://www.channel4.com/news/articles/politics/international_politics/cambodia+killing+fields+trial+opens/2958372
During the reign of the Khmer Rouge from 1975 to 1979 20, 000 men, women and children were killed there.

Meg and I went out at 6pm to the river for a boat cruise. We were the only ones on the boat! It was for 1 hour $15. The guide had been learning English at his church, he told us so he wanted to practice with us. He had a really good inpression of Canadians. He said there are organizations in Cambodia to help people and some of the good ones are from Canada. He mentioned their help with the land mines and also with the children. That's good news.

Friday, February 13, 2009

First Post


This is Vibol, the Tuk Tuk driver and his family. Melissa and Sheldon met them on their trip to Cambodia in 2007 and have kept in touch. Vibol is making our accommodation arrangements in Siem Reap and will be picking us up from the airport. I can't wait to meet them!

We'll be leaving from Seattle for Phnom Penh on Sunday and will arrive on Tuesday Feb 17th.
A friend of Vibol's will meet us at the airport. Will keep you posted.